
In Memoriam
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I found out today that my therapist and the nurse practitioner who provides my medication supervision are leaving to start a private practice of their own near Des Moines.
If you’re in the mental health delivery system, you’ve probably experienced this kind of trauma. It takes years of searching to find a therapist who gets you, to find a psychiatrist or NP who works with you, only to have them leave, or the clinic closes, or whatever kind of insurance you have doesn’t work anymore. The most essential piece of your recovery drops out of existence. So you flounder, and in that vulnerable state, have to start searching all over again.
I’m lucky in that they will only be an hour away. After talking with my therapist today, my plan is to stick with them if they can get Medicaid-certified. Lots of “ifs.” So, it doesn’t seem like such a big deal. Except it is.
I hate how stuff like this confounds and unmoors me. Even with a solution in sight, I feel hysteria crawling up my throat. Just when my support system seemed to be jelling, just when it seemed safe to go back in the water…
I have to watch my catastrophizing—I see sharks when it might just be tuna. I have to keep breathing. I have to remember I’ll be fine no matter what happens. I’ve been here before—back when my boat didn’t even have a motor. So, I’m okay. I just wish there wasn’t so much chum in the water with me.
Posted in Read Along
Went to see my psychiatrist this morning. He said I seemed to be doing very, very well right now, especially considering the time of year.
This May marks his ninth year of treating me for my bipolar disorder, and we have been through a lot together. My runaway episode, my near-constant mood shifts early on, all my hospitalizations, and my current longest time of stability since I’ve been diagnosed. I thank God for him and his understanding of what kind of treatment I need.
I already understood a lot about mental illness before I was diagnosed, and that has discomfited some people I have been in treatment with. A therapist told me one time, “You know too much,” when I happened upon the reason she had asked me a particular question. He has never seen it that way. He accepts that I’m as knowledgeable about the disease as I am and works with me to make me more knowledgeable about my treatment options and why he does what he does. He has none of this “God complex” that so many doctors have, and I’m thankful for that because nothing irritates me more than a doctor treating me like I’m an idiot just because I have a mental disorder.
So I just thought I would post about how thankful I am for modern psychiatry that recognizes that these are physical as well as emotional diseases and that we are no longer in the dark ages about mental illness as we were before the medication revolution. And I wanted to thank Dr. Andrew Bishop for his role in keeping me and so many other patients stable and able to function in society.
Posted in Read Along
Please note: This is a guest blog from Rebecca at “A Journey With You”. I hope that you’ll take the time to make a comment of encouragement to our author. After all, it takes some courage to step up and write. Thank you!
I grew up in a small town. We were poor, and my dad was an alcoholic. In the mid-seventies, when I was eleven, my mom and dad got divorced. My mom married my step dad and we began a completely new life. My step dad was a civil engineer and changed jobs frequently so we moved a lot. I ended up graduating from high school in Cairo Egypt.
After high school, I attended college in Washington State. I changed colleges three times before graduating with a BA from The Evergreen State College in Olympia.
I was first diagnosed with depression when I was in my mid-twenties. I was a social worker for child protective services, and my marriage to my college sweetheart was falling apart. I remember telling my husband at the time that something was wrong, and I wanted to talk about it. He said, “If there is something wrong, it is with you, because I think everything is fine.”
His statement seemed so final and dismissive.
It wasn’t long after his shutting me and my concerns down that I moved out.
I moved into a little attic apartment that I called my treehouse and I bought a bright red couch. I had once asked my husband if we could have a red and white checkered bathroom and he said no, that he didn’t want to look at that every day. Buying that red couch was my way of stepping out in the world.
My husband’s favorite color was brown. I threw out everything brown.
At the time, I was writing poetry and getting it published in university journals and other magazines. I was really starting to come out as an artist. I was in therapy. I had many friends.
I made a couple of bad choices regarding men and those relationships ended up putting me on a stressed out downward spiral.
It took a year or more of that extreme stress for my mental health to begin to deteriorate. I ended up psychotic.
When I first became psychotic, I thought that someone was drugging me. I thought all the fears, all the sweats, all the paranoia and inability to sleep were due to a drug that someone was giving me. I had no idea that I was experiencing a psychotic episode.
Because I was a social worker, I knew all the laws about involuntary and voluntary commitments so when my family tried to intervene and get me into a psych hospital, I just said I wasn’t a danger to myself or others. I also lied about the extreme paranoia I was experiencing.
After visiting many hospitals and many attempts, I voluntarily signed myself into a psych ward. By then, I was so psychotic that they kept me isolated for three to five days (I can’t remember the length) before letting me out in the general population. By then, the medications they had me on had started to ease the symptoms of psychosis.
I was diagnosed with bipolar disorder with psychotic features. That diagnosis would stick for almost ten years. Later, I would be told I was well and taken off all medication (which led to a psychosis that lasted six months), and then I was diagnosed schizoaffective and eventually I was diagnosed with paranoid schizophrenia.
It is still amazing to me that people can be in college, or working at their career and then end up with the symptoms of a severe mental illness. It can knock people out of their prime with a speed that takes the wind out of everyone around.
I am happily married now, in treatment, and getting some of my poetry published again. It took a long time to get the correct diagnosis, treatment, and get my life back on track. I am happy to report that the stereotypes and stigma around paranoid schizophrenia are not accurate. I am living a meaningful life. I still have symptoms of my illness, and I miss the twenty-something woman I once was and the path she was on, but there are new paths and I plan to put one foot in front of the other and forge a new way.
I am currently trying to devote my time to writing. I attend both a poetry and memoir writing group, and instead of traditional therapy, I have a writing coach that is a LMFT, of course I see a psychiatrist and take my medication as if my life depended upon it, because in a very real way, it does.
I blog because I want to educate people about paranoid schizophrenia, be an advocate, and practice my writing. It is wonderful to interact with so many amazing people. If you have the time, come and be a part of my journey at http://www.ajourneywithyou.com
I hope to hear from you.
Posted in Read Along
Mhm. Social control. If you’re now already covering your tracks and generating enough false leads to confuse spyware and so on, please start. Not just online either; please be aware of RFIDs etc and screw with those. And teach every bored looking teenager you meet, to inflate a condom and float it gently up to cctv cameras so they block them.
Originally posted on Longreads Blog:
The Defense Department, through its Defense Advanced Research Projects Agency (DARPA), started funding academic and commercial research into speech recognition in the early 1970s.
What emerged were several systems to turn speech into text, all of which slowly but gradually improved as they were able to work with more data and at faster speeds.
In a brief interview, Dan Kaufman, director of DARPA’s Information Innovation Office, indicated that the government’s ability to automate transcription is still limited.
***
Experts in speech recognition say that in the last decade or so, the pace of technological improvement has been explosive. As information storage became cheaper and more efficient, technology companies were able to store massive amounts of voice data on their servers, allowing them to continually update and improve the models. Enormous processors, tuned as “deep neural networks” that detect patterns like human brains do, produce much cleaner transcripts.
And…
View original 80 more words
Posted in Read Along
Title of the year and article of the week: Gout, Urine and Guinea Pigs (scroll down). And apart from that it’s business as usual, research, opinion, music and film.
But first let me pimp my link. I made a bipolar memes page for all the crap I’ve made. Sorrynotsorry.
Listdump
General
15 memoirs of mental illness
10 tongue twisting word disorders
21 things nobody tells you about being depressed
10 strange and obscure facts about mental health
10 mental illnesses and their myths
Bipolar
10 things you should never say to someone with bipolar disorder
10 terrific things about bipolar
10 things I hate about bipolar
10 myths about bipolar
10 more myths about bipolar
7 facts and myths about bipolar
25 things only someone with bipolar would understand
10 brutal things you should know about being married to someone with bipolar
Linkdump
Gout, Urine, and Guinea Pigs: The Weird History Of Lithium. “Gather round and I shall tell you a tale! A tale of a mistaken assumption that started a weird, long science odyssey that included urine, steak, and guinea pigs, and ended in a miracle drug.”
Philippines: Boy with bipolar sells books to earn money for law school.
Movie shines light on mentally ill LGBTQ: “More than one in four members of the LGBTQ community suffers from a mental illness, researchers say, and one affected man volunteered his personal life for a movie to raise awareness. Andrew Cristi has bipolar disorder and borderline personality disorder.”
Titanic Titus Andronicus: Patrick Stickles on Why His Band Made a 93-Minute, 29-Track Rock Opera About Manic Depression.
Perky Pundit: Your mental health shouldn’t be compromised because of stigma.
It Takes a Village: The Tragedy and Triumph of Detroit’s Slum Village.
Hether Fortune on leaving White Lung, Dealing with Her Demons, and the Third Wax Idols LP.
South Africa: Maternal mental health – bipolar and baby. (Read this one to see a little of why I say our public psychiatric healthcare is sad/scary.) More about mental health in SA.
Fuzzy thinking in depression and bipolar disorder: New research finds effect is real.
Bipolar Disorder and Failure to Launch Syndrome. Sally, Age 21: A Case Study Post published by Robert “Bob” Fischer M.D. (explanation of the syndrome)
Bipolar Speech Patterns: A Different Kind of Subtext.
Crazy good: How mental illnesses help entrepreneurs thrive.
Lil’ Chris did not seem ‘different’ before death, says sister.
This post is inspired by the graphic avove that I saw on my Facebook newsfeed from a site called Recovery 4 All: https://www.facebook.com/recov4all?pnref=story
This seems to be quite genius advice. Feelings come and feelings go. How simple! But… yes there is a but, can people with mood disorders do this? I know I can hang on to feelings for days. It wouldn’t be so bad if the feelings were good ones, but they usually are not. The feelings that hang on to me or to which I hang on are usually negative ones, like anger, fear, anxiety, unease, just bad feelings. I wish I could say to them “You have overstayed your welcome. Please go now.” And sometimes I can. But the majority of times they ARE me, so I cannot ask them to leave. Finally, when I realize that they really are NOT me, then I can ask them to leave. Then they lose their power over me and I gain myself and my life back. I wonder, if I had this made into a bracelet or something very visible to me, if I could stop being the captive of these negative feelings?
I recently learned how negatively stress affects you depends wholly on how you view stress. Link: http://www.ted.com/talks/kelly_mcgonigal_how_to_make_stress_your_friend?language=en This is a quote from the TED lecture: “When you choose to view your stress response as helpful you create the biology of courage. stress gives us access to our hearts, the compassionate heart that finds joy and meaning in connecting with others and yes your pounding physical heart working so hard to give you strength and energy. And when you choose to view stress this way, you’re not just getting better at stress, you’re actually making a pretty profound statement, you’re saying that you can trust yourself to handle life’s challenges and you’re remembering that you don’t have to face them alone.” This is incredible! Your outlook on stress can affect whether you die of a heart attack or thrive and live healthily on. If this can be done with stress, why can we not think our way out of feelings? If we can, then we can have more control over our lives, and we can live the lives we want to live, without anger, fear, anxiety, worry, and unease. I mean, stress is no small thing, and if we can mitigate its effects upon us, then it is possible that we can control our emotions and mitigate their effects upon us. Gives me hope! Hope and resilience, my two best life fellows.
Posted in Read Along