Daily Archives: April 27, 2015

Prognosis: Who knows

The appointment with Dr. B went…very well. He actually spent a half hour talking to me. And listening.
While I did not agree with him on a couple of things (“Light therapy is the only cure for seasonal depression”, been there, done that, doesn’t fucking work even if you think I am lying) and He’s strongly against Effexor, says it’s the number one anti depressant to cause mania. If you’re not on a mood stabilizer, absolutely yes. But with a stabilizer, it has been one of maybe five that have worked for more than a couple of months without ass trash side effects. The withdrawal is the true hell, even tapering.
He wasn’t unwilling to go there…Just reluctant.
Then I opened my big fat mouth and his eyes glittered. I commented on Latuda and how it seems to have such varied effects on different people, so how good can it be. And like a man in bed with a pharma sales rep, he all but got out pompoms and declared Latuda would be the best way for me to go as it is an EXCELLENT medication for depression, especially used in concert with my prozac and mood stabilizer.
Ugh.
I was actually curious about Latuda until I started reading possible side effects. Then reading how varied the reactions are for some, it scared the hell out of me.
Too late, as long as insurance will pay and not do its “let’s substitute whatever is similar but costs us less” thing. Yes, they do that, and no they don’t ask the doctor as long as they are approving a drug in the same class.
The rest stays the same.
This one will be taken at bedtime, he claims it will make me sleep. Either way, I get sleep or I get insomnia, I win. I’ve done years in insomnia hell, and now that I have a kid, I could use the extra waking hours to get things done. Or if it helps me sleep, winner winner chicken dinner, too.
If it makes me freak out like Abilify or Lexapro, there will be hell to pay. And doesn’t make me comatose, I can’t do comatose.

But he was really cool and seemed to listen and understand. Asked if I was always so anxious or if it was triggered. Then asked if I’d ever done drugs. I copped to smoking pot a few times because I really haven’t got a drug history outside of the “legal” ones which are sometimes worse than the illegal ones. (Remeron? Seroquel? Serzone?) He laughed and said he’d not fault me for some occasional weed.
I haven’t used it in six years but hey, okay, cool. Nice to know if I ever want to smoke something that makes my IQ drop a hundred points and puts me to sleep.
He also confirmed something every other doctor blatantly denies. Abilify, lithium, seroquel-they all cause major weight gain.
And he warned me there could be some minor gain with Latuda (hey, I’ve lost five pounds since going on the focalin, so maybe it will balance out) but not to those extremes.
Furthermore,I was afraid he was going to start trying to shove the atypical antipsychotics as mood stabilizers and he flat out said, “Lithium is fine if you are bipolar one. For bipolar two, Lamictal is the gold standard.”
Excellent, dude. So my life experience is based on some factoids which all the other doctors invalidated.
I already respect this man immensely.
Aside from the light therapy thing…I’ve tried it. Fake light doesn’t work. And worse than the lack of sun in winter is the fact that I can’t seem to ever get warm. When I am cold, I can’t think, let alone function. You toss depression into the mix with anxiety, it makes valid sense why I break down.
He even validated the fact the seasonal isn’t lifting as it usually does by pointing out it’s been a very cold, wet April so until the temperature rises and stays up, I am going to need the prozac and Latuda if I hope to come out of the depression.

K.
I will get them all filled Friday.
Provided I survive the massacre, er school carnival, Thursday night.

It wasn’t an absolute clown shoed day. I even cooked myself meatloaf for supper. Which of course the kid won’t touch because it’s not on a tray and frozen. I hadn’t had a good meal in a week, I was due. Plus, all I had to eat all day was a slice of cheese and half a hot dog. The cat got the other half of that after ripping into my finger and making me bleed to steal it.

There were a couple of moments that sort of freaked me before the appointment and I know it’s probably because of the anxiety and zoning out but…First, I missed my turn off I always take to get to the office. I’ve been going there for six years so missing this was out of character for me.
Then I decided to stop and put a dab of gas in the car…And even with the cash in hand, I put the gas cap back on, opened the car door, and realized, wow, I am about to drive off without paying.
Totally “lights are on but no one is home.”
I suppose this is where the propaganda of “panic won’t kill you” pisses me off. It’s not the terror of having a panic attack in front of people. Been there, done that, a zillion times. It’s not fear of dying or “losing control.”
It’s because EVERY time I do this “immersion therapy” and force myself into situations that cause panic in hopes of confronting and conquering…I get so physically rattled that my body reacts independently of my brain. I had a wreck when I was sixteen because the traffic was everywhere and people behind me were honking and I told my brain, don’t go,yet the panic made my foot mash the gas.
THAT is what I fear. Because whatever you fuck up during a moment of panic is still on you, for life. If the panic causes you to make poor choices or limits your ability to process information properly so you can make the logical choice…
I’d say that’s pretty damned valid as well as frightening.
It’s beyond phobia or fear or being embarrassed. If the panic sets off every receptor to the extent that your body and mind are altered…It’s dangerous. For you and for others. So pardon me if I “cling” to my panic rather than facing it.
I faced it plenty and all it did was leave me with more messes than any progress mentally.

So…5:37 p.m.
Here is my spork count.
spork iview

One will be gone because my kid hasn’t stopped talking and complaining for three hours. I still have to bathe her and it’s two hours til her bedtime.

Which will leave me with one spork for the rest of the night.
It’s like a Pokemon battle, you gotta choose well or you could lose the fight.
Shower? Clean house? Fold laundry? Read? Write? Glue sequins on my eyeballs and start an ijazzling trend?

Then again, the uzi child may cost me both sporks and I’ll have nothing left except to slither into the crypt.
Which of course makes me feel pathetic but you can’t write checks for money you don’t have.
Or eat food when you have no spork, as it were.
I make sense to my cats.

Okay, I lie. My cats don’t care if I am on fire as long as the dishes are filled.
They also don’t make me walk them when I am too depressed to breathe so it’s a trade off.


I’m Home

Well, I made it home from the hospital on Saturday and today I completed my second ECT session. The hospital...

The post I’m Home appeared first on Pretending to be What We Are.

Man I Feel Old Today

I’m only 46 but today is my daughter’s 30th birthday and it’s making me feel so much older.

My mood has been pretty steady. I had a couple of days of depression but I accidently missed a dose of my pills so I think that is to blame.

I am still spending a great deal of time cooking, cleaning and hanging out on the computer. I am also trying to get in at least a mile a day, the exercise seems to also be helping with the mood. I don’t know if it’s chemicals or because I am accomplishing something.

I’m down 28 pounds now! I am only creating goals of 5 pounds at a time so that I don’t get overwhelmed, at least the scale is finally going in the correct direction.

I am thinking of applying for a work from home job. I think it would be good for me to do something with my time and bring in a little money as well.

Time for me to make more positive changes.


Wonderland

Mental health recovery is full of activity. In fact, if someone like me acted on the advice that is freely available, I would barely have any time left to stand and stare.

Last month I wrote a thinly disguised rant about World Happiness Day. It bugs me still. It’s the reams of good advice that get to me. In fact, mentally balanced people have been giving out good advice since, well, ages ago …. In his book The Anatomy of Melancholy (published in 1621) Robert Burton (1577 – 1640) ended with the following: ‘ Be not idle.’ I never met the guy, but I’m going to go out on a limb here and say that I’m pretty sure that he was a happy go lucky fellow.

Down the Rabbit Hole.png

I am not disputing that there activities that have a proven track record in helping to foster resilience and promote physical and mental well – being. What I want to say though is that there are many factors that swirl around all this good advice that those well – meaning happy folks just fail to take into account. First and foremost it is the most basic factor that these pieces of good advice are, well … good. I have to concede that getting exercise  has a proven track record in having positive benefits for one’s health, mental and physical. And before you all start protesting that you can actually hurt yourself going to the gym, or feel dispirited by only managing what feels like a small thing – such as walking round the block. Yes, I know. It was me who you saw tottering round the block on his bicycle on the pavement back in 2002 (before it went back in the shed for another year.) And it’s me who thinks of ‘spinning’ in a gym as a form of mental torture – not at all recovery – oriented.

There is something uniquely destructive about hearing/reading/talking about effective strategies for good mental health when they all feel out of reach. What the promotion of these nuggets of good advice do is counter – productive. They say that if you – yes, you – don’t act on the fruits of all this research then, well, who’s the one to blame?

 

What I put more store by than all this busyness to promote wellness renders obsolete much of what  the recovery industry has to offer.

It is the ability of peers like myself to say and do absolutely nothing. What lies at the very heart of recovery is the ability to be with whatever is troubling. And by ‘troubling’ I mean anything from a nagging insistence that life is devoid of value to voices clamouring for your attention every day, every hour insisting making you a slave to their cackling thrum; resisting the rush to help.

Doctors and therapists send us away. They send us away with notes for the pharmacist, with feelings we don’t understand (but they do). We spend money and time on Self – Help books that send us away by telling us to put the book down and go and act; act in our own self interest.

An imaginary rabbit once said: ‘Don’t just do something, stand there.’

 

Leisure

What is this life if, full of care,
We have no time to stand and stare.
No time to stand beneath the boughs
And stare as long as sheep or cows.
No time to see, when woods we pass,
Where squirrels hide their nuts in grass.
No time to see, in broad daylight,
Streams full of stars, like skies at night.
No time to turn at Beauty’s glance,
And watch her feet, how they can dance.
No time to wait till her mouth can
Enrich that smile her eyes began.
A poor life this if, full of care,
We have no time to stand and stare.

William Henry Davies (1871 – 1940)

 


Wonderland

Mental health recovery is full of activity. In fact, if someone like me acted on the advice that is freely available, I would barely have any time left to stand and stare.

Last month I wrote a thinly disguised rant about World Happiness Day. It bugs me still. It’s the reams of good advice that get to me. In fact, mentally balanced people have been giving out good advice since, well, ages ago …. In his book The Anatomy of Melancholy (published in 1621) Robert Burton (1577 – 1640) ended with the following: ‘ Be not idle.’ I never met the guy, but I’m going to go out on a limb here and say that I’m pretty sure that he was a happy go lucky fellow.

Down the Rabbit Hole.png

I am not disputing that there activities that have a proven track record in helping to foster resilience and promote physical and mental well – being. What I want to say though is that there are many factors that swirl around all this good advice that those well – meaning happy folks just fail to take into account. First and foremost it is the most basic factor that these pieces of good advice are, well … good. I have to concede that getting exercise  has a proven track record in having positive benefits for one’s health, mental and physical. And before you all start protesting that you can actually hurt yourself going to the gym, or feel dispirited by only managing what feels like a small thing – such as walking round the block. Yes, I know. It was me who you saw tottering round the block on his bicycle on the pavement back in 2002 (before it went back in the shed for another year.) And it’s me who thinks of ‘spinning’ in a gym as a form of mental torture – not at all recovery – oriented.

There is something uniquely destructive about hearing/reading/talking about effective strategies for good mental health when they all feel out of reach. What the promotion of these nuggets of good advice do is counter – productive. They say that if you – yes, you – don’t act on the fruits of all this research then, well, who’s the one to blame?

 

What I put more store by than all this busyness to promote wellness renders obsolete much of what  the recovery industry has to offer.

It is the ability of peers like myself to say and do absolutely nothing. What lies at the very heart of recovery is the ability to be with whatever is troubling. And by ‘troubling’ I mean anything from a nagging insistence that life is devoid of value to voices clamouring for your attention every day, every hour insisting making you a slave to their cackling thrum; resisting the rush to help.

Doctors and therapists send us away. They send us away with notes for the pharmacist, with feelings we don’t understand (but they do). We spend money and time on Self – Help books that send us away by telling us to put the book down and go and act; act in our own self interest.

An imaginary rabbit once said: ‘Don’t just do something, stand there.’

 

Leisure

What is this life if, full of care,
We have no time to stand and stare.
No time to stand beneath the boughs
And stare as long as sheep or cows.
No time to see, when woods we pass,
Where squirrels hide their nuts in grass.
No time to see, in broad daylight,
Streams full of stars, like skies at night.
No time to turn at Beauty’s glance,
And watch her feet, how they can dance.
No time to wait till her mouth can
Enrich that smile her eyes began.
A poor life this if, full of care,
We have no time to stand and stare.

William Henry Davies (1871 – 1940)

 


I’m More Than a Guy with Bipolar

Years ago, our local paper needed an interview with a gay person. The Gay and Lesbian Center referred them to me for a comment regarding marriage equality. After that I became the papers “go to” guy whenever they needed a comment regarding any gay issue. I didn’t mind. It was only about every six months […]

The post I’m More Than a Guy with Bipolar appeared first on Insights From A Bipolar Bear.

Spoons and Sporks Theory

This is the original post.

I’ve read it several times. It makes absolute sense with bipolar or any other chronic mental illness.

Now spoons are cool. I’d prefer a spork clock, though. Much better to use at stabbing things. (Ya know, like food, erm…)
spoon

So…I get 12 spoons for the entire day.

I woke every ninety minutes and start the day off exhausted. Minus one spoon.
I get up and pee, then wake my kid and poke her to get dressed. Minus one spoon.
I feed her and the cats inside then the cats outside and if I am lucky, I will put on clothes I didn’t sleep in yet are likely covered in lint and cat hair. I am down another spoon. Three spoons and I’ve been awake an hour.

So I get my kid to school and battle the anxiety of traffic, jackasses talking on their phones instead of driving, and a panic attack or two.
Lose a spork.
I go home, look at all the housework I should do, then realize I am still exhausted from yet another night of interrupted sleep so I choose to sit down and watch something or read. But the whole time in the back of my mind, I am berating myself for being such a wuss.
Bye bye spork nymber 5.
Depending on if I am expected to socialize, assist, run errands, whatever my jailer, er R, needs…I lose two sporks because the social thing is living hell for me. And also, when your mind is sending out the wrong messages, the people around you react like you’re insane so there’s another spork down.
If I stay home the whole day, I am bombarded with noise from outside. It sets off the anxiety and panxiety…Loss of another spork.

2p.m. and I have 3 sporks left.

So say one is lost when I have to pick up my kid in the petri dish, bring her home, deal with her tantrums, her half dozen screeching friends in the yard, the constant demands and defiance…
5P.m.
two sporks left.

I feed my kid, get her bathed, homework done, play a bit, read to her, deal with her acting out some more…
One spork left for the day.

So by the time she goes to bed at 8 or so…I have one spork.
Do I use it to shower? To clean house? To read,write, do the things I *used* to enjoy?
Or do I just wave the white flag, fall into bed, and admit, I am out of sporks and that’s all there is to it.

Some days you may start out with 24 spoon/sporks.
Other days may be so bad, you start out with six.

The whole point is, like a bank account, you cannot write checks for money that isn’t there. And I can’t borrow spoons once all my are gone.

I may even use this with the shrink today. I am so nervous I can’t seem to focus on anything but dreading the appointment. And I don’t even know why. Maybe because my biggest fear is being dismissed.
I need help.
For fuck’s sake, help me.
I’m out of bloody sporks and feeling stabby, not to mention hungry. I can’t eat pudding with my hands, man.

Anyway..I didn’t put it as eloquently as the original poster but you get the gist. Overdrawn is overdrawn, bank account, or mind.

I don’t expect you to write me a check for a thousand dollars if you only have seven hundred.
So don’t expect me to function as if I have endless spoons when in fact, I am overdrawn before the day is even through.


Pre shrink jitters

Last night was…bizarre. I made it through the day, by the skin of my teeth, because it was a sunny day and that brought everyone and their dog’s cousin outside. Motorcycles, gangs of roving children, bickering adults, domestic disputes louder than usual next door…Grr, it was hell on my nerves. So I had a blah mood and I did shower, get my yard mowed and some weeds plucked but…The noise…It was too much. I read. I couldn’t even watch a movie or anything, the noise was so bad. I let my kid play outside, next thing I know, there are six shrieking kids on the swingset. It’s weird because when I was manic, it didn’t bother me as much, I invited the pitter patter of more tiny feet. When depressed and on anxiety’s edge…
Ugh, I wanna crawl in the closet and cover my ears. Mature, yes. Reality ain’t pretty sometimes.
On the plus side…I finished my second book since Friday. On the bad side, I was so worn out by 7 pm, I retired to my bedroom where I played word games with my kid for an hour, put her to bed, and climbed under the covers. I thought I’d rest, I just need some calm and quiet. Unfortunately, I kept starting to doze off, jolting up, and then nodding off. Then waking up. I woke up so many times,it was maddening. It was too cold to get up. I only had one blanket on my bed because the cats horked up on the others (never change cat foods, it’s just bad juju.)
It was a rough night.
Then the usual Monday routine with my kid screeching she’s still tired, pick my clothes out for me, so I do, and she shrieks that it’s not good enough for her fashion…I was relieved to drop her off at school. Of course, with that relief comes the realization that in three or so weeks, she’s all mine day in day out for three whole months.
She’s going to eat my depressive anxiety ridden soul.

Today is shrink day. Second appt, first since he lowered the prozac and added the focalin. What do I say to him? The focalin has made a big difference (seriously, I read 900 pages in two days when it took me six months last year to read two hundred pages, drastic improvement but…The anxiety and depression aren’t getting much better. And I can even buy that the anxiety is just…it’s like a limb, it’s always there and some days it hurts and some days it aches and somedays it’s KILL ME NOW, THIS IS EXCRUTIATING. All the outside triggers of noise and stimuli…
Fine, let’s focus on the depression.
Of course, now I am all hopped up on “he’s studying me, he knows I had a good mood back in January so he thinks I am a malingerer making it all up and he’s going to put a note in the file that says I am a faker and uncooperative…”
I wish I could blame this fear of doctors on my mental stuff. But I’ve been this way since I was 12 years old. Doctors freak me out.
So…I wait. And ponder. And try to come up with appropriate responses which is completely whack because I am faking nothing and my honesty should be enough.
I’m surviving.
That’s not the same as enjoying life.
And yeah, I know, the pursuit of happiness is all we’re entitled to, but at this point…Even my pursuit function is broken.
HELP. ME.
The biggest problem is the younger docs are all sold on the new cross labeled anti psychotics for bipolar and the newer anti depressants and aside from Cymbalta, I have had nothing but shit luck with their so called wonder drugs. And the Cymbalta made me manic. Reporting side effects, though, makes you feel shitty because they make it seem like it’s your fault for not being strong enough to handle it.
Clown shoed.

I need to eat. But the meds made me queasy and food will help but food will also make me gag.
I need to sleep through the night again instead of in ninety minute increments for a grand total of four hours a night. But I cannot be zonked out in a coma with a kid on the loose so the meds are useless.
I am just going to tell it like it is. And in the interest of being fair and open to his thoughts, I am going to ask if he has any ideas of the next step in my treatment. They push the therapy thing and well…It’s a great idea but considering the only place my insurance covers traumatized me and just hired R’s further traumatizing daughter…I’m lost.
It’s not that I am unwilling. I am traumatized. Give me someone I can trust and work with, I’m good.
Except that’s kind of a lie, too. I think going in and venting is good. I also think all these different diagnoses based on a counselor’s experience and bias just confuse me further and make it all worse. “You mean, I’ve spent fifteen years working on X personality disorder and you’ve known me forty minutes and think I have Y disorder so all my work has been in vain?”
How is that not going to fuck your head up?
And it’s not that I am in denial and afraid of being told something about myself I don’t want to know. In fact, when I found the good shrink and she changed my dysthymic (12 years) diagnosis to bipolar and introduced mood stabilizers…It was a good deviation and it worked and I am eternally grateful to her. But she also took the time to form an opinion based on talking to me for more than 40 minutes.

Blast it all. I’d be so happy if I never had to see another shrink, take another pill, and or even deal with mental illness again.
I want my life back.
What life I ever had, anyway. Maybe I never did learn to live life because of the rapid cycling and depressions.

I dunno.

On an end note, I’d like to thank everyone for their kind comments and reblogs on yesterday’s post. All we have are our own voices and words, so thanks for helping put it out there.


Stepping Out In Faith

I can’t disclose all the details yet, but I’m taking a huge leap of faith in my career.  I’ve been praying that God leads me into something new, and I think I’ve found what it’s supposed to be.  But please pray that this opportunity is the right thing for me to do.  The danger of someone with bipolar disorder having big dreams is it’s hard to tell a solid opportunity from a delusion of grandeur.  Our enthusiasms sometimes get the better of us, and we wind up chasing chimeras instead of accomplishing our  dreams.  So please pray for me for direction and wisdom as I continue pursuing this opportunity.  I’m not good at leaps of faith–I like backup plans and solid ground under my feet.  So pray that my anxiety doesn’t get the best of me, either.

On the dental front, my tooth has stopped hurting so I can leave off the painkillers.  I still have several days on the antibiotic to completely kill the infection before they go in and see what needs to be done.  Hopefully I can start eating solid food again soon.  Thanks for the prayers for the speedy recovery!

Only a few more weeks until I’m done with school for the spring.  Last class day is May 6, and I give finals May 8 and May 11.  Final paper is due May 4; pray for the kids to find their direction and make this paper work for them.  It hasn’t been a hard semester, but it has been frustrating at times.  Hopefully everything will go well for the final as well.  And I get to celebrate another personal milestone–no going into the hospital for the fourth year in a row.  That feels so wonderful to say, because for five years, I went inpatient once  a year every spring.  I wondered if it would ever stop.  But praise God, I’ve made it another year.  That’s something to be thankful for!


Here’s the things about suicide

DSCN4398

I just read an article in the Washington Post about a young woman named Natalie Fuller, her suicide (see below.) That’s what brought on this discussion, on this sad and awful subject. But as long as I am writing about it, I may as well do a sincere and truthful job, difficult to read and write, but truthful. Here’s the thing about suicide, mentally ill people, who commit suicide not well. They do it because of the illness. If they were their well selves, they would never do it. Either they are totally out of touch with reality and are having auditory, or visual, or some sort of hallucinations, so the voices tell them to do something and they listen. Or they are in so much pain, as happens in a depression, that they just want to stop the pain. Again, it is mental illness that makes them do it. I have been in a depression so severe that I seriously thought about and even planned my suicide. I couldn’t stand the pain and I couldn’t stand to live without myself, because the depression had swallowed me up whole and I was gone. My personality was gone, I was gone. This blank, hopeless, scared, shadow of a person, this was not the real me. It was not the Me who is typing this post. It was my mental illness, it was my illness, it was illness. If I had died by my own hands, it wouldn’t really have been so. Just like someone dies of cancer, I would have died of a possibly terminal illness named bipolar d/o.

It takes a lot, a lot, a lot of strength to live with mental illness. For me, I have to do it because I have a son, a niece, a nephew, a brother and a sister. I won’t put them through the trauma we went through after my brother. I will absolutely not! I so wish Natalie Fuller could have been saved.

Here’s the The Washington Post article, it’s called “My daughter, who lost her battle with mental illness, is still the bravest person I know” (link below.) It’s about a young woman, who shortly before her 29th birthday, stepped in front of a train in Baltimore. Her mother wrote the article. Natalie Fuller, this bright young woman went into a psychotic phase at age 22, in her sophomore year in college. As is typical, her mental illness symptoms had been developing, probably at least a year before she was diagnosed. She went into a psychotic phase (out of touch with reality), she started hearing voices that told her to do things, like trespass on her neighbors’ property. She was arrested for this, which is also pretty typical. Finally, she was diagnosed with severe bipolar d/o, in a severe manic phase. She was hospitalized for 2 months, given medication until she was symptom free, and then released. She came home just like her normal, effervescent, energetic, bright self, stayed with her mother, cooked, made art work. She went back to college, to start her senior year. And then… she abruptly stopped taking her medication and fell ill again. She again had to be hospitalized, this time for 8 months! Again she was put on medication, and came home in a normal state, although, according to her mother, more subdued, less like herself. The illness had taken its toll on her. (This is usually not the case with bipolar d/o, recovery is pretty complete, no lasting effects as long as you stay on the meds. Of course, there are medication side effects that can cause fatigue and weakness.) She went through this cycle many times. Even if she missed her meds for a few days, the voices would come back, and the voices invariably told her to stop the meds totally. The final time she went into this cycle, she was convinced that she was 1/4 people for whom drugs did not work. She made the decision to stop taking the meds altogether. And a few months later, she stepped in front of a train.

This is all so familiar. My brother. My brother. He had been showing symptoms for, most likely, a year and a half before he had his psychotic break (break with reality.) He heard voices. We had to call the police to get him hospitalized. They gave him meds in the hospital that returned him to his normal state of being, as right as rain. He was convinced he didn’t need the meds, although he did, desperately need them, he was convinced that he could control his own brain. No one could convince him otherwise. He would throw all his meds in the trash dumpster outside the hospital the day he was released. This cycle repeated itself five or six times. Each time, he would be hospitalized, put on lithium and other meds, each time he became absolutely normal, each time, upon release, he would throw out his meds. Until finally, his wife left him, taking the children, I know the last morning he was alive, he called his wife at 7 am and asked to speak to the kids, she told him he could not, they were asleep. At 8 am he left… and he was gone. We never saw him again. My sweet, movie star handsome, very intelligent, kind, loving, sensitive, adorable and adored brother. I don’t know if the voices told him to stop taking his meds, but he lost his battle with this infernal disease. I wish I’d never heard of bipolar d/o, I wish I didn’t know anything about it, I wish my brother was still here, I wish I hadn’t spent half my life battling this illness. No one really wins against it. You cope, you fight, you live. The more severe the form, the more severe the loss. It is not a blessing in any way, as some deluded people seem to think so. It is loss. Sorry, it’s very hard not be negative and sad after talking about my baby brother. Mostly, I am fine though. And as long as people stay on their meds, they will be, more or less, fine as well.

But here are some statistics that may help if you or your loved one is newly diagnosed:

  • Typically people have symptoms for 70 weeks before they are diagnosed with a psychotic mental illness.
  • Often people are arrested and put in jail in psychotic phases.
  • Often people start exhibiting symptoms (http://www.mayoclinic.org/diseases-conditions/bipolar-disorder/basics/symptoms/con-20027544) in their late teens or early twenties.
  • Many newly mentally ill people maintain that they “are fine, everybody else is crazy.”
  • Mentally ill people also come off their meds, and of course they get sick again. Perhaps it’s because they miss the high of mania… (my manias are not high, but very anxious, in a way this is lucky, because I don’t miss the anxiety when I am not manic.)
  • And if they stop their meds, if we stop our meds, the outcome can be devastating.

http://www.washingtonpost.com/national/health-science/the-demons-got-my-beautiful-loving-daughter/2015/04/20/cdaaa338-dfc2-11e4-a1b8-2ed88bc190d2_story.html?tid=sm_fb